7/11/12
An Article
I saw this article linked through a blog of another mommy of a baby born with congenital heart defects. Since Marsi's birth and subsequent diagnoses and surgery I have become a researcher in what could have caused the heart defect she was born with and what to do with trying to diagnose things with any future children we may have. I know why it took so long to diagnose Marsi with her PDA. She was THRIVING!! Who checks for heart conditions when a baby is reaching every milestone even if they have a murmur? Not many people at all. I know that I wasn't worried. Well, hindsight is 20/20 and if future children have any symptoms Marsi had, I know what I am going to ask for. One of the first things that I will ask for is a foot O2 reading. This article explains why. Marsi was monitored for O2 while in the hospital, so it may not have worked for her, but it is a very good starting point for a lot of CHD patients. Even if me asking for it makes doctors think about it or know about it. All I know is that God helps you through things that you are given. I was given a precious little girl with a heart defect. If I can help one other person, it is completely worth the emotions that I have gone through with this. I love my little girl more than anything and I would hate to see a family lose a child when non invasive testing can root out a majority of moderate, unknown at birth, CHDs.
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